In all my years of travelling on Dublin Bus, yesterday was the first time I noted a unicycle in the luggage rack.
Yes, a unicycle.
I surveyed my fellow passengers, trying to work out which of them was the owner of this wonderful vehicle.
I settled on the chap with the long, unkempt hair who had the look of an overgrown adolescent returning from a festival in some muddy field.
My mother would regard anyone with such an appearance as a drop-out. But for all I know, he was returning from a weekend of circus work to reclaim his 9 to 5 capitalist place as a cog in some wheel this Monday morning.
In any case, the nonchalance with which he picked up his unicycle and stepped off the bus, as if it were the most normal thing in the world, made me smile.
There and then I decided that in the future, after transplant, I will always carry around some interesting item with me each day.
A musical instrument, or a set of juggling clubs, or a lacrosse stick.
And I shall wear a flower in my lapel, or a flower in my hair.
Life will be much more colourful then.
Monday, March 28, 2011
Tuesday, March 22, 2011
Fleeing the killer in the sky
Now there comes again the first stirrings of sunnier days ahead. Summer will not leave us waiting much longer, and already, the temperature is up, the wind is taking it a little easier, in truth it is more of a friendly breeze anyway these days.
Sunshine makes me happy. Waking up to it instantly promises something of a better day than might be delivered in cloud or rain. I feel that instant familiar urgency of the eternal child that makes you want to pull your clothes on and race out into anywhere that is outside, terrified you will miss one minute of it.
It seems impossible that I am sick when the sun is shining. That anything could be wrong on a day like this is hard to believe, and I do find it more difficult to take my illness seriously when the weather calls for ice-cream and beer gardens.
The sad truth however is that my relationship with the sun is over. Once transplanted, the rays it emits will be my nemeses, as one of the unfortunate upshots of having a new kidney is that you are left extremely prone to skin cancer when on anti-rejection drugs.
Already, I have been advised to wear sunscreen every day for six months of the year, from March to September, even while on dialysis, and I was told in Beaumont Hospital that there is a “100% chance” I will develop skin cancer if I do not take at least three leaflets' worth of precautions in future.
I did not point out to the highly educated doctor that when the odds reach 100%, you are looking at something of a certainty rather than a chance.
I wonder what it was like to be part of one of those fearless generations who lived at a time when we didn’t know the sun could kill you.
I look at my parents. My mother, blessed with dark skin, has never worn sunscreen in her life, she boasts a tan for months at a time, a shade of healthy bronze which she gets from nothing more than a lick of the sun.
My father was a bit more careful. One favourite image that remains with me is that of him walking through the gates, after a day spent saving hay, a straw hat shielding him from more freckles.
Ah yes, ‘twas not from the wind I took my own fair skin.
They have told me I will never again sunbathe, that even ambling in a hint of a heatwave, weaving my way in and out of shade, will call for long sleeves, a wide-brimmed hat, Factor 50 on any inch of exposed skin.
It’s not that I ever got a tan. The sun largely ignored me, but that pleasure of being blanketed by natural heat is a therapy and a privilege that I will miss.
It’s one of the few glories open to everyone, the poor and the rich alike. It costs nothing to lounge under some splendour and soak up the Vitamin D and the happiness that a cloudless blue sky can invoke.
It costs nothing, but it could cost me my life. In some ways, for all the limitations that are placed on me through this illness, taking away my sunshine is the worst.
Sunshine makes me happy. Waking up to it instantly promises something of a better day than might be delivered in cloud or rain. I feel that instant familiar urgency of the eternal child that makes you want to pull your clothes on and race out into anywhere that is outside, terrified you will miss one minute of it.
It seems impossible that I am sick when the sun is shining. That anything could be wrong on a day like this is hard to believe, and I do find it more difficult to take my illness seriously when the weather calls for ice-cream and beer gardens.
The sad truth however is that my relationship with the sun is over. Once transplanted, the rays it emits will be my nemeses, as one of the unfortunate upshots of having a new kidney is that you are left extremely prone to skin cancer when on anti-rejection drugs.
Already, I have been advised to wear sunscreen every day for six months of the year, from March to September, even while on dialysis, and I was told in Beaumont Hospital that there is a “100% chance” I will develop skin cancer if I do not take at least three leaflets' worth of precautions in future.
I did not point out to the highly educated doctor that when the odds reach 100%, you are looking at something of a certainty rather than a chance.
I wonder what it was like to be part of one of those fearless generations who lived at a time when we didn’t know the sun could kill you.
I look at my parents. My mother, blessed with dark skin, has never worn sunscreen in her life, she boasts a tan for months at a time, a shade of healthy bronze which she gets from nothing more than a lick of the sun.
My father was a bit more careful. One favourite image that remains with me is that of him walking through the gates, after a day spent saving hay, a straw hat shielding him from more freckles.
Ah yes, ‘twas not from the wind I took my own fair skin.
They have told me I will never again sunbathe, that even ambling in a hint of a heatwave, weaving my way in and out of shade, will call for long sleeves, a wide-brimmed hat, Factor 50 on any inch of exposed skin.
It’s not that I ever got a tan. The sun largely ignored me, but that pleasure of being blanketed by natural heat is a therapy and a privilege that I will miss.
It’s one of the few glories open to everyone, the poor and the rich alike. It costs nothing to lounge under some splendour and soak up the Vitamin D and the happiness that a cloudless blue sky can invoke.
It costs nothing, but it could cost me my life. In some ways, for all the limitations that are placed on me through this illness, taking away my sunshine is the worst.
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